Our understanding of AAV is increasing

AAV (ANCA-associated vasculitis) is a group of progressive, rare, severe autoimmune diseases1,2

AAV can affect blood vessels in different parts of the body resulting in damage to vital organs such as the lungs, kidneys, nervous system, gastrointestinal system, skin, eyes, and heart.2

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Recent updates

Kidney week – American Society of Nephrology 2020 (virtual)


Renal disease during maintenance treatment in ANCA associated vasculitis (AAV) remains a problem and glucocorticoid use is high

Poster

Country differences exist in the treatment of ANCA associated vasculitis (AAV but high dose and prolonged glucocorticoid use is observed across Europe

Poster

German Congress of Rheumatology 2020


Maintenance treatment for ANCA-associated vasculitis (AAV) in real world practice in Germany - reality of vasculitis remission, relapse and burden of disease.

Poster

EULAR 2020


Maintenance treatment for ANCA-associated vasculitis in real world practise in Europe – reality of vasculitis remission and relapse and significant burden of disease.

Presentation

Patterns of drug treatment for maintenance phase of ANCA-associated vasculitis (AAV) in real world practise in Europe – prolonged glucocorticoid use is common and various treatment regimes are used.

Poster

ERA-EDTA 2020


Significant burden of disease during maintenance treatment of ANCA-associated vasculitis (AAV) patients in real world practice in Europe.

Poster

Rare Revolution Magazine – Special edition


The latest edition of Rare Revolution Magazine is dedicated exclusively to ANCA-associated vasculitis. Rare Revolution is a digital magazine giving a voice to patients affected by RARE conditions and the charities that represent and support them – you can view the May edition here.


WCN 2020


Real world clinical outcomes in ANCA associated vasculitis (AAV) – unmet needs in achieving and sustaining remission and avoiding cumulative organ damage.

Abstract Poster

Investigate AAV


Join the Rare Disease Investigation Team and put your expertise to the test in our interactive challenge. You’ll find it’s fully compatible with most desktop and mobile/tablet browsers (not for use on older versions of Internet Explorer or on Microsoft Edge).

Complete the challenge

Patient videos


View stories from Catherine, Jeremy, John & Susan and Shanali on the patient experience page.

Videos