Our understanding of AAV is increasing

AAV (ANCA-associated vasculitis) is a group of progressive, rare, severe autoimmune diseases.1,2

AAV can affect blood vessels in different parts of the body resulting in damage to vital organs such as the lungs, kidneys, nervous system, gastrointestinal system, skin, eyes, and heart2

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ERA-EDTA
AAV HCP Clinical Compendium
AAV HCP dialogue tool

Recent updates

EULAR 2021


Scientific session recordings highlighting the challenges of balancing clinical priorities in ANCA-associated vasculitis.

ERA-EDTA 2021


Scientific session recording focusing on the reality of remission and relapse aswell as recent clinical evidence regarding glucocorticoids and impact on patient experience.

Kidney week – American Society of Nephrology 2020 (virtual)


Renal disease during maintenance treatment in ANCA associated vasculitis (AAV) remains a problem and glucocorticoid use is high

Poster

Country differences exist in the treatment of ANCA associated vasculitis (AAV) but high dose and prolonged glucocorticoid use is observed across Europe

Poster

German Congress of Rheumatology 2020


Maintenance treatment for ANCA-associated vasculitis (AAV) in real world practice in Germany - reality of vasculitis remission, relapse and burden of disease.

Poster

Rare Revolution Magazine – Special edition


The latest edition of Rare Revolution Magazine is dedicated exclusively to ANCA-associated vasculitis. Rare Revolution is a digital magazine giving a voice to patients affected by RARE conditions and the charities that represent and support them – you can view the May edition here.

WCN 2020


Real world clinical outcomes in ANCA associated vasculitis (AAV) – unmet needs in achieving and sustaining remission and avoiding cumulative organ damage.

Abstract Poster

Interactive tools


Use our interactive educational tools to discover more about ANCA-associated vasculitis (AAV).

AAV World is a brand-new educational game that sheds light on the clinical priorities in AAV in a fun and interactive way. Take part in AAV World and test your skills through a mix of challenges, brainteasers, riddles and quizzes. Or why not join the Rare Disease Investigation Team and put your expertise to the test in our mysterious challenge.

Complete the challenges

 

AAV Mechanism of Disease


See how the interaction between neutrophils and the alternative complement system are at the heart of the vasculitis process in AAV.

More information

 

Patient videos


View stories from Catherine, Jeremy, John & Susan and Shanali on the patient experience page.

Videos