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Vifor Pharma Privacy Policy for understandaav.com Website

We, Vifor Fresenius Medical Care Renal Pharma Ltd. (“Vifor”), are committed to protecting your personal data in compliance with applicable laws and our data privacy policies. This privacy policy explains what information relating to you Vifor may collect; the means by which we may collect, use, or share your personal data; how we store, process and protect this information; and your data privacy rights.

“Personal data” is any information by which you can be individually identified either directly or indirectly; such as name, address, telephone number, email address or other information that relates to you.

What personal data do we collect and why?

Through or in connection with this website we collect and use personal data as follows:

  • We collect and store access data that is automatically transmitted to us by your browser when you visit our website. Data recorded for communication between your browser and our web server during a connection may include information concerning your IP address, geographic location, browser used, language and version of the browser software, resources you have accessed and similar information. We use this data for our legitimate business interests to run, maintain and secure our websites and network systems.

  • If you send us a question or other communication using the contact form on this website or otherwise such as by email, we use that information to respond to your request;

  • If you send us an adverse event report or other safety information for pharmacovigilance, we record and process that information in accordance with our legal obligations.

We may aggregate personal data collected through this website for statistical purposes.

The legal basis for the collection and use of your personal data is our legitimate interest in operating a website that allows users to send queries and other communications. In relation to personal data concerning health received in connection with the reporting of safety information, the legal basis is public interest in the area of public health.

With whom do we share your personal data?

We may share your personal data with other companies of the Vifor Pharma Group to collect the information required to respond to your request or for the other purposes specified in this privacy policy. Companies of the Vifor Pharma Group are specified at https://www.viforpharma.com/en/about-vifor-pharma/global-presence

We work with third-party service providers who help us to collect and process safety information or who provide other services such as technical support or data hosting. These service providers may have access to your personal data in order to provide the services.

We may also disclose your personal data to:

  • official authorities where applicable by law (e.g. reporting adverse events for pharmacovigilance), court order or other legal proceeding;

  • our legal and other expert advisors;

  • distributors, license partners or other companies with whom we collaborate for the purposes specified in this privacy policy.

Our service providers and collaboration partners are legally bound to keep all personal data confidential and to use such information only to perform the services for which we engaged them or to comply with legal obligations.

We could disclose your personal data to third parties in connection with the sale or transfer of all or part of our business, in which case we would require the third parties to treat those data in accordance with this privacy policy.

Some of the above-mentioned parties who receive your personal data may be located outside the country where you live, including in countries not regarded by the competent authorities as providing an adequate level of protection for personal data. In such cases, we ensure that appropriate safeguards are in place to protect your personal data such as EU standard contractual clauses. A copy of these clauses may be obtained from our Data Protection Officer (GroupDPO@viforpharma.com).

How long do we store your personal data?

We store your personal data for as long as required to fulfill the purposes outlined in this privacy policy, unless a longer or shorter retention period is required or permitted by law. Personal data that you provide when you subscribe to receive electronic communications are erased 5 years after the date of our last interaction with you. By law we must store your personal data relating to safety information for at least ten years after the medicinal product is no longer available.

What are your rights regarding your personal data?

You are entitled at any time to access your personal data that we hold. To the extent legally permissible, you can request that your data be erased, that errors be corrected or that processing of your personal data be restricted. You can also object to our processing of your personal data or exercise your right of data portability where applicable.

If you would like to exercise your rights, please contact us as described in the section “How to contact us” below. Please note that applicable laws may prevent us from complying with certain requests, such as to erase safety information or to restrict our processing of it. You are entitled to lodge a complaint with the data protection supervisory authority.

Links to other sites

We may provide links to other websites that we believe are useful. We cannot guarantee the standards or privacy policies of the third-party websites to which we link. We are not responsible for the content of any website that is not owned by a Vifor Pharma Group company.

Personal data of children

This website is intended for adult use only, meaning anyone 18 years of age or older. We do not knowingly collect personal data from anyone under the age of 18 through this website. We assume that any person who provides their personal data through this website is at least 18 years old. If you would like to contact us about personal data that your child may have provided without your consent, please see the “How to contact us” section below. If we learn that we have collected personal data from a child under the age of 18, we will erase such information promptly if allowed under applicable law.

Updates to this privacy policy

We may update this privacy policy from time to time. In this case, we will post updated versions on this page. A revised privacy policy will apply only to personal data collected after its effective date (see below).

How to contact us

Please contact us if you have any questions about this privacy policy or if you wish to exercise your privacy rights:

The “controller” of the personal data:
Vifor Fresenius Medical Care Renal Pharma Ltd.
Rechenstrasse 37
9014 St. Gallen
Switzerland
Tel. + 41 58 851 80 00

Our representative in the EU / EEA for data privacy purposes:
Vifor Pharma Deutschland GmbH
Baierbrunner Strasse 29
D-81379 Munich
Germany
dataprivacy_EEArep@viforpharma.com

Our representative in the UK for data privacy purposes:
Vifor Pharma UK Ltd.
Second Floor, Waterfront
Watermans Business Park
Kingsbury Crescent
Staines-upon-Thames
TW18 3BA
United Kingdom
Tel: +44 01276 853 600
infovpuk@viforpharma.com

Our Data Protection Officer:
GroupDPO@viforpharma.com
Vifor Pharma Management Ltd.
Flughofstrasse 61
P.O. Box
CH-8152 Glattbrugg
Switzerland
Tel. + 41 58 851 80 00

safety@viforpharma.com

Effective date: 7 October 2022

EUVAS

European Vasculitis Society website

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ASN

American Society of Nephrology

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ACR

American College of Rheumatology

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European Renal Association

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EULAR

European Alliance of Associations for Rheumatology

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Vasculitis International

Europe

www.vasculitis.eu
Selbsthilfe Vaskulitis e.V.

Germany

www.vaskulitisverein-rlp.de
Associazione Pazienti della Sindrome di Churg Strauss

Italy

www.apacs-egpa.org
Suomen Vaskuliittiyhdistys ry

Finland

www.vaskuliittiyhdistys.fi
Selbsthilfe Vaskulitis Mainz

Germany

vaskulitis-mainz@gmx.de
Vasculitis Stichting

Netherlands

www.vasculitis.nl
Liga Portuguesa Contra as Doencas Reumaticas

Portugal

www.lpcdr.org.pt
Association Vascularites

France/Belgium

www.association-vascularites.org

Ireland

Asociación Española de Vasculitis Sistémicas

Spain

www.sid-inico.usal.es
Associazione Malattie Autoimmuni

Italy

www.associazionemalattieautoimmuni.it
Associazione Nazionale Malati Reumatici ONLUS

Italy

www.anmar-italia.it
Australia and New Zealand Vasculitis Society

Australia / New Zealand

www.anzvasculitis.org
Federación Española de Enfermedades Raras

Spain

www.enfermedades-raras.org
Liga Reumatológica Española

Spain

lire.es/
Vasculitis Stowarzyszenie Chorych

Poland

vasculitis.org.pl/